Everyone everywhere seems to be completely stumped by the fact that I haven’t been cured since the last time I saw them.  To be completely honest, it’s a phenomenon that gets old really fast, from my point of view.  There's also the crowd who hears about the current idea my doctor has had and becomes convinced that it will heal me.  They get really rather upset when I don't share the ... View Post

A common symptom of ME/CFS is Brain Fog.  It’s nothing like anything I’d ever experienced before I got sick, so it’s hard to describe it.  It’s like whatever is connecting my brain to the rest of my body gets detached.  My reflexes get slow, and my mind gets confused. No huge deal when I’m at home watching a movie.  But it’s a pretty big deal if I’m driving down the middle of a crowded ... View Post

A lot of times people will ask me if we’re going to  ___________ (plant a garden this year? Plan a vacation? Paint a bedroom? etc) and I’ll say that I’ve just been too sick for us to do it.  The common response is, “Yeah, but… can’t Doug do it?” Yes, of course, Doug does have the physical capability of completing simple projects even when I’m sick.  However, do you have ANY idea how much Doug ... View Post

We human beings have a habit of trying to fix things.  We hear a problem, we try to fix it in the easiest way possible.  Because of this nice little habit we have, I tend to get a lot of people ‘fixing’ my problem 10 seconds after hearing about it.  One of the main suggestions I get is to drink caffeine.  I mean, I’m tired all the time and caffeine makes a person not tired.  Easy peasy, right?  I ... View Post

I get a lot of people who tell me they are jealous of my life.  That they'd love to be able to just lie around all day.  (here's a hint: never say that!) I also have a lot of friends and family members who seem completely confused if I ever mention that I'm having a hard time with my illness.  Because of them, I’ve thought about this question over and over.  How can I possibly explain?  Long term ... View Post

I thought we'd start off with a big one :) Doug and I have been married for 7 years and are both in our 30s.  As I’m sure you can imagine, the subject of us having kids is one that comes up quite often.   Most people erroneously believe that the reason we don’t have children is because I’m not healthy enough to carry a child full term, or that my somehow illness affects fertility. The ... View Post